Iulia is 6 years old and she was born in Krasnodar early, on the 33rd week of pregnancy. After birth, the child did not breathe and was on a ventilator for several days, after which she had a difficult recovery path. Yulia had a strong muscle tone, which her parents fought hard with, taking the child to massage and physiotherapy courses. When she was one year old, the doctors diagnosed her with cerebral palsy and spastic diplegia. Since then, Julia began a real struggle for a full future.
At the age of 6, she has already undergone numerous therapy courses in Russia, the Czech Republic and Poland. Thanks to these courses, the girl learned a lot: she even learned to walk with a walker and with the help of canes. But this is not enough for a full life, so the parents continued to look for ways to help their child.
Recently, Iulia underwent a complex and expensive operation at Children’s Hospital Saint Louis, USA. It was a long-awaited operation, which took a whole year to collect money in all possible ways and hope for a miracle. But a miracle happened, after the operation, the girl's spasticity left her legs, and her feet sank to her heels. It is very difficult to restore her muscles now. The girl needs to learn everything anew, because everything that she knew before, she did in good shape. For this, Iulia needs rehabilitation, but her parents have no money left at all.
Her mother writes: “Next year Yulia will be 7 years old, and we truly hope to return Iulia to school as much as possible, and the neurosurgeon's forecasts motivate us to do this, being that with the correct restorative therapy, Iulia will walk on her own for short distances.”
Iulia needs to undergo rehabilitation at the Centrum Intensywnej Terapii Olinek Clinic.
For this we need to collect 6300 EUR.
Dear friends, our foundation has a new ward – Dimitry Mukhlyakov. The boy has hydrocephalus and urgently needs our help. Dima is one of two twins born at 34 weeks by cesarean section. Since birth the boys head was much larger than normal. He could not breathe on his own so he was rushed to the intensive care unit and connected to a ventilator. Dima needed surgery to install a shunt. The neurosurgeon of the children's regional hospital refused to perform that surgery so Dimas parents were forced to look for a doctor who could perform it. They found one. After the operation Dima begun to feel much better, he was steadily improving and was even disconnected from the ventilator. But right before the Christmas holidays the hospital was understaffed and the doctors that were there decided, for safety reasons, to reconnect the child to the ventilator. After that they could no longer disconnect Dima from the ventilator.
Sadly overtime the child began to feel worse and needed surgery again, but the doctors refused to do it. Before getting discharged from the hospital he had to undergo a tracheostomy and a gastrostomy, and was also given a ventilator for at home use. The doctors warned his parents that he wouldn't be able to breathe without it. But the love and care of two parents works wonders! Once at home Dima immediately began to feel better. He breathes on his own, eats well and actively plays with his sister and brother, but he can't stand up. Dimas parents have already turned to doctors from Moscow, St.Petersburg, Kazan and Syktyvkar for help many times, but they were rejected by them. The clinic that accepts to perform the surgery on him is the Schneider clinic in Israel.
Dear friends, this operation will give Dima the chance for a better future. Do a good deed right now. Leave a donation for this boy. Any amount is important to us. Let's change Dima's life together!
Dear Friends, we started a new fundraiser for Sophia Yankina. A completely healthy girl was born on 1st of December 2014. It was a cherishable 3 months for the whole family until the little girl started to experience epileptic seizures. From that on, life has been divided between before and after, with parents fighting the daughters' illness till the present day.
First 4 years were a constant struggle to get the diagnosis and moreover find the cure. Sophia's parents took her to the best hospitals and medical institutions of Russia. First they went to local doctors in Surgut, then were referred to other specialists in nearby bigger city Nizhnevartovsk and then even bigger Tyumen. Still with no answers to be found, the family had to travel to Moscow and St. Petersburg to meet the highest ranked professors. In total the little girl had gone through 19 different treatment plans, including heavy hormonal therapy. But nothing was given any positive results.
Then, 2 years ago with the help of compassionate people, Sophia got to “Schoen Clinic” in Germany, where she underwent a life changing surgery. The amount of seizures were declining and the little girl started to finally lead a normal life. It was a dream come true for the whole family after these long miserable years. That was until recent tests showed, unfortunately, progression of the illness. Now Sophia need our help to get another highly costly procedure to localise and treat the core of the sickness. It is called SEEG-guided epilepsy surgery and Dr. Antonio Russi from medical center “Teknon” has agreed to operate Sophia.
Dear Friends, to save Sophia's life we need to raise 90 156 EUR. Our trust has conjoined with another fund to raise such summ for this appeal. We genuinely hope that we can meet the target in time to help Sophia. This operation is her only chance to get rid of painful seizures, anguish and traumas from falling. She has this chance and we can make this chance a reality. Let's change Sophia's life for the better!
Dima Makolkin was born an absolutely healthy child. He was growing normaly and constantly pleased his parents with his new achievements. But at the age of 2, the boy became very ill with serous meningitis, which cost him a carefree and happy childhood, and in return gave him a lot of difficulties that the boy has had to go through for 6 years.
Serous meningitis is an inflammatory disease of the brain. Faced with it in 2015, Dima managed to escape from its shackles several times. But the constant relapses that happened to Dima as soon as he stopped taking antibiotics, gradually worsened his general condition. A relapse that occurred him in 2019 gave big complications: Dima could not hold his head, his arms and legs were weak, and he could barely cope with breathing, because of that the doctors had to connect him to a ventilator, perform a gastrostomy, and later a tracheostomy, through which he was connected to a ventilator for a long time. When Dima regained consciousness, he needed rehabilitation. The boy's parents found a hospital that agreed to accept their son for further treatment. Thanks to the efforts of resuscitators, the boy was removed from the ventilator, and he began to breathe through a tracheostomy.
After that, the boy underwent several courses of rehabilitation, which helped to significantly improve his condition and even get rid of gastrostomy. It was a real victory. But the main victory is still waiting for him ahead. To return to happy childhood life, Dima needs to remove the tracheostomy. Such operations are carried out in Russia, but his case is special - the narrowing of Dima's airways occurs due to tracheomalacia, and Russian doctors cant help him. The doctors of the Israel clinic Souraski are ready to carry out the necessary surgical treatment for the boy as soon as we collect $37,854.
Friends, $23,267- the amount that we collected for Nikita Rutvyan's treatment will be transferred to Dima's fundraising. This means that in order to give Dima a chance for a healthy future, we need to raise another $14,587. Each of you can give Dima the opportunity to breathe without help of tracheostomy by clicking on the "Help" tab right now.
Dear friends, we have a new ward - Ivan Izotov from the Grafovka (Belgorod region, Russia). He has spastic tetraparaesis. And more than anything, this three-year-old boy dreams about the day when he will be able to learn to walk, run and play ball with other children! This childhood dream could come true, but only if we fundrise $14,145 by the 7th of November.
Vanya was born at the 29th week of pregnancy with a weight of only 1320 grams. From the first minutes of his birth he started the fight for his health. The baby was in intensive care for a long time. A month after discharge, permanent rehabilitation began. His parents are doing everything possible to put their son on his feet. This is a titanic work for any person, especially for a child, to whom every movement is given with great difficulty and pain. But Vanya is a real fighter, together with his parents, overcoming all difficulties, the boy confidently goes to his goal. And now he has a chance for a healthy future. Thanks to the spinal cord surgery performed by Dr. Park from the American clinic St. Lois Children's Hospital, his dream is going to become a reality!
Writes Vanya's mom: "The disease makes Vanya scream in pain, causes him irreparable deformations, does not let him exhale. It inspires fear of not being able to pay the bill on time, which means getting a colossal rollback in Vanya's condition. After all, the clinic has already given us a chance, there simply won't be another opportunity! We've been trying so hard for 3 years... But I was never able to do the main thing – to collect the necessary amount of money for a healthy life of my son, for his one and only dream. Please help to be a mom who has done everything for her child!
I'm not just asking, I'm begging! We really need to be in time to collect the necessary amount of money for the operation."
Dear friends, this operation is Vanya's only chance to get rid of spasticity in his legs forever. After the operation his life will improve significantly, spasticity will not prevent him from rehabilitating and getting new skills. Vanya has a chance to walk! Let's change his life together!
Evelina Kolmakova is the longed-for and only child in the family. She was delivered at full term but suffered from birth asphyxia during delivery which led to severe brain damage. Her parents followed all bits of advice from neurologists to lessen the severity of medical conditions. They went through medications, special massage courses, physiotherapy, Voita therapy in the Czech Republic. Still, at Evelina’s 1 year and 2 months, she was diagnosed with cerebral palsy and tetraparesis. Since then, baby girl exercises daily at home or undergoes intensive rehabilitation programs in specialized care centers.
She works out as a professional athlete! She is driven by a dream to dance like a ballerina. But to make this dream come true she needs our support.
In September, Evelina has had a selective dorsal rhizotomy (to reduce spasticity) at the St. Louis Children's Hospital in the USA. The success of the treatment depends 70% on postoperative rehabilitation. Evelina needs urgently to go to the intensive therapy center “Olinek”, where highly qualified specialists will help her restore previously acquired skills and master new ones, but now without muscle spasticity in her legs! To help her get there, we need to fundraise 5 450 €.
This rehabilitation program is a real chance for a new, healthy future for Evelina, where she may even be able to dance one day! Let's help Evelina's dream come true and change her life for the better!
Petya is one of the twins. He was born on the 7th of December in 2007 together with his brother Boris. The boy had health problems from his birth.
At the age of two months, Petya was hospitalized with severe jaundice, where he spent almost two months. Then he was diagnosed with hepatitis. The parents did not even suspect that diagnosis was wrong. The boy grew and developed in the same way as his peers, and in 2019 he had a serious deterioration of his health. He was under the supervision of a cardiologist, a gastroenterologist, a neurologist, an endocrinologist, a pulmonologist and a hematologist, but none of the treatment that doctors prescribed for him relieved his condition. Doctors managed to make the correct diagnosis only recently.
Petya has a rare disease - Abernethy malformation. This is a vascular anomaly in which there is no portal vein, and venous blood from the intestine and spleen bypasses the liver without being cleaned.
The only treatment method that doctors in Russia could offer Petya is liver transplantation. But the boy's parents managed to find an alternative. The doctors of the children's department of the Schneider clinic are ready to help the boy. They have repeatedly carried out two-stage surgical treatment using a unique method, after which the liver of children with the same diagnosis as Petya's was self-healing and there was no need for its transplantation after surgery.
In Russia such operations are not carried out, so we can say that this is the only chance for Petya to avoid a liver transplantation and become healthy. But the cost of this chance is $ 45,000. For the boy's parents the price is too high and they need our support.
We sincerely believe that together with you we can change Petya's life for the better.
We need to do that as soon as possible, because boy doesn't have time to wait.
Lets give Petya a chance for a healthy life!
Misha is 6 years old, he is an active and lively boy.
However, 3 years ago Misha started to complain of inconvenience when walking. This marked the start of multiple examinations and visits to various specialists in search of the cause of the disease. In a year doctors managed to find the reason - it was neuropathy (peripheral nerves malfunction due to their damage). This was accompanied by movement disorder and even reduction of leg length by 1 cm.
He was assigned a disability status. Misha's family started to struggle for the boy's health, trying medicines, rehabilitation, continuous exercise therapy, physiotherapy and courses of massage. Unfortunately, the treatment did not bring any results. Neither did special orthopedic shoes help. The parents managed to have Misha examined in Kyiv, where it was discovered that the sciatic nerve had been damaged as a result of an incorrect injection. Thus, Misha was diagnosed with sciatic nerve neuroma. Doctors in Kyiv refused to perform an operation, suggesting possible serious consequences: they will not be able to completely remove the neuroma, leaving the risk of developing oncology.
Over the past six months, Misha's condition has only worsened: his lameness has worsened, his foot has become deformed, and when he walks, his leg falls on the outer edge all the time, which is why the boy has even got a clavus. The boy cannot move all his toes, neither can he step on the heel.
Misha's parents contacted Assuta Clinic (Israel), and neurosurgeons are ready to carry out a complex operation to remove the tumor, and a corrective orthopedic operation. 59,163 USD are needed in order to perform the operations.
Vanya is a real fighter. He was born at just 28 weeks by an emergency operation and spent the first months of his life in a hospital. He went through several complicated operations, blood transfusions and had drip bulbs with immunoglobulin connected to his body. A shunt was implanted in the boy's brain in order to drain extra cerebrospinal fluid, after which the whole system had to be changed and adjusted. Despite this, Vanya remains a very positive kid. He understands everything, uses sentences in his speech and most of all likes to play with his elder brother. But unfortunately, he still cannot walk - he only crawls on hands and knees and stands at the support. However, Vanya's parents do not give up. They keep doing exercises with Vanya - both with the help of specialists and independently. And they become fruitful - now Vanya even tries to walk with support. In order to consolidate these results and take a step forward the boy needs to take a rehabilitation course in International Clinic of Medical Rehabilitation (Cyprus).
Timofei is long-awaited child. But epilepsy prevents him from normal development.
Timofei’s family is fighting for every achievement of their boy, but the peculiarity of the disease demands regular treatment in order to support the child’s development.
The girl is still baby, she is under 1 years old. Ksenia was born with a rare genetic disorder - Apert syndrome. It is a premature closure of the bones of the skull which usually happens by 3 years old. This early fusion prevents the skull from growing normally, its volume becomes limited which affects the shape of the head and face. In addition, intracranial pressure rises which leads to deafness, blindness and disability.
Islam grew up as an ordinary healthy boy. He did not suffer from any disease, was an active and a sunbeam child. He studied very well and was keen on Mathematics. But the life of the Gudkov family was divided into "before" and "after".
Beautiful Emiliya was born 7 years ago. She grew up in a big loving family and brought joy to her family members. When she was just 2 years old, she already knew the main colors, could name them in Russian and English, knew animal species, could count to 10 and backwards, she used phrases in her speech.
Taisiya was born a healthy girl – all her family was happy to welcome a little miracle in this world. The girl grew, developed and made her family happy with her achievements.
But one day everything changed. On March 12, 2016 Taya started making inexplicable actions – she was waving up with her arms. Various examinations started, and different doctors and professors shared their opinions. A terrible diagnosis was revealed: Taya had developmental brain malformation, polymycrogyria (pachygyria), infantile spasm syndrome (epilepsy) and delay in speech development. he girl’s parents make everything they can to help Taya grow up and live a full life.
The child took four rehabilitation courses based on Professor Kozyavkin method which brought great results: Taisiya has learnt to sit independently and rise with the help of support, she became more sociable and curious, she examines things around herself with great interest, smiles and laughs often. Doctors did not advise to stop rehabilitation courses as this treatment may fulfil the girl’s dream – be able to walk.
Thanks to your support we were able to raise 3,600 euros to pay for the course in autumn 2019.
When two twin-sisters Khvostikovs were born and the world welcomed them, their parents were happy to the moon and back. However, only after some time doctors notified the parents that younger girl Sophia had a congenital malformation.
8 years ago a girl with a beautiful name Kamilya was born in Tatarstan in the Khayrullins family. Kamilya “complete” or “perfect”.
However, the baby was born with congenital deformities of the spine. Thanks to the operation, which was done in Kazan immediately after birth, as well as numerous rehabilitation courses taken regularly until she turned 5 y.-o., the disease did not show up. As the girl grew up, leg pains started bothering her, while treatment was not bringing relief.
Unfortunately, the additional operation worsened the child’s condition.
Thanks to your support we were able to raise 49,742.00 USD to pay for an operation to eliminate spinal cord fixation, to release the nerve roots of cauda equina and correct vertebrae.
Danial was not a premature infant. He was born 4 years ago without complications. However, already in the delivery room midwives noticed some deformities of soft tissues in the lumbar region of the boy's body. The doctor told the parents that most likely their child would not walk.
His parents did not give up and devoted significant time and attention to Danial's health. After taking regular swimming classes, the boy started walking when he was just 11 months old! After that, Danial had to take a series of massage, electrophoresis and electrostimulation procedures, a course of injections, as well as physical therapy.
Thanks to this active work, not only can he walk, but also actively run, jump, ride a bike, - which makes his parents extremely happy. However, despite all efforts, the boy walks with a limp due to the lag in the development of his left leg: it is shorter by almost a centimeter, and the muscles are weaker. There are also problems with the urinary system. All this - a consequence of myelocele.
Gradually the condition was worsening, which might lead to the fact that the doctor's prediction would, unfortunately, come true. There was a threat that Danial won't be able to walk.
Thanks to your support we were able to raise 13849 euro to pay fot the operation in the Assuta Clinic (Israel). This fundraising project was carried out together with the parents of Danial.
Ilya is 12 years old. He is an excellent pupil receiving only high grades. He plays piano at music school and participates in city poetry contests. However, the boy moves about only in a wheelchair, because he cannot walk. For this reason, he is home-schooled.
Ilya has tethered spinal cord syndrome. He's had problems with the urinary system since he was born. He has suffered from constant infections accompanied with fever. Moreover, the older the child gets, the more often they occur. Endless diseases, fever, new treatments, antibiotics - this is vicious circle within which the boy cannot normally grow, develop or study.
Thanks to your support we were able to raise $5,046 for the examination in the Israeli clinic.
Most of Milana's life she has been suffering from a severe disease - epilepsy. The disease exhausts the girl, and the hardest attacks prevent her from growing and developing normally.
When Milana was 2 y.o., she received expert advice in Israel. The prescribed treatment helped to improve her condition for a year, but unfortunately, all the results were lost later on. Milana's parents tried a significant amount of medicines - yet, nothing could help.
However, Tel-Aviv Sourasky Medical Center was ready to help the girl. This examination and the subsequent treatment were the last hope for Milana and her family.
Thanks to your support we were able to raise $ 3,249.03 to conduct medical tests.
Yana is the third child in the family, a long-awaited child. She was born prematurely. At birth her height was only 38 cm. When she was just 2.5 months old, the baby girl had her first operation which lasted 5 hours.
But Yana and her family are fighters. Thanks to regular massage sessions, physical therapy exercises and rehabilitation courses, the girl is actively growing. She walks by herself, is enrolled in the first grade of a music school and even plays the flute. Last spring it was again detected the girl had tethering of the spinal cord.
Complications were stopped last time, thanks to an emergency operation. However, Yana again complained of pain in the back and right leg, and almost did not feel the lower part of her body. The Israeli clinic was ready to help the girl.
Thanks to your support we were able to raise $ 49,550 to pay for the treatment.
Vitya is a cheerful and emotional boy. He likes to play games and communicate with others, swim in the pool and have practice with a logopaedist. This practice brings very good results. However, at his age of 7, the boy can sit, kneel and stand only when holding his parents' hands.
The problem is that Vitya suffers from epileptic seizures. He even has problems with sleep now, since the moment he falls asleep - seizures begin. Vitya's parents have been fighting for his health throughout all his life. They constantly take rehabilitation courses, consult specialists and search for new methods of treatment, but his condition is getting worse and they feel utterly discouraged. Anticonvulsant medications do not help him, while the hormone therapy cannot be used anymore.
The boy needed to be checked at the TEL AVIV MEDICAL CENTER in Israel, where the appropriate treatment will be offered to him. Thanks to your support we werer able to raise $18,116.80 was needed to conduct the course.
Matvey is a cheerful and smart boy. He and his brother were born prematurely. He was growing up together with his brother, however, gradually he started to lag behind in development. It seemed that it would take a little bit more time for him to start walking. However, the time passed and no miracle followed. The reason for that was the boy's diagnosis - he had cerebral palsy. Matvey's family is fighting for every achievement of their boy, but the peculiarity of the disease demands regular treatment in order to support the child's development. Now Matvey needed to undergo a rehabilitation course in the International Clinic of Medical Rehabilitation in Cyprus. Thanks to your support we were able to raise 3800 euro to pay for the treatment.
Sveta is a very kind and responsive girl. She is keen on learning poems and reading books. She also likes to communicate with other children and play, draw and do crafts, and then give them to others as presents. Sveta studies at school and gets only high grades. And if you look at the photo, you’ll notice that she is no different from her peers. However, the girl cannot walk by herself – she stands and moves around only with support.
Sveta was born prematurely and spent the first two months of her life in hospital. All this time the family has been fighting for her health: Sveta constantly undertakes rehabilitation courses and physical therapy courses.
International Clinic of Medical Rehabilitation, which uses the method of Professor Vladimir Ilyich Kozyavkin, whose technique is recognized as one of the most effective in the rehabilitation of cerebral palsy, was ready to help the girl.
Throught your kind donations we were able to raise 3,850 needed to complete the rehabilitation course.
Grisha is two years old. He is a curious, cheerful, smiling boy. He likes to dance and sing with his elder sister and to run and play football with his elder brother.
But when Grisha was undergoing a health checkup for kindergarten admission, doctors detected a small lump on his lower back. Following additional examination, a scary diagnosis of Spina bifida was made. Neurological disorders may affect the boy at any moment. The disease causes loss of sensitivity in legs and functional disorders of pelvic organs. This process is irreversible and without a timely surgical intervention Grisha faces the risk of remaining disabled for the rest of his life. SOURASKY MEDICAL CENTER in Israel was ready to help the boy.
Еhanks to your support we was able to raise $32 321.91
This summer, when Grisha was undergoing a health checkup for kindergarten admission, doctors detected a small lump on his lower back. Following additional examination, a scary diagnosis of Spina bifida was made.
Neurological disorders may affect the boy at any moment. The disease causes loss of sensitivity in legs and functional disorders of pelvic organs. This process is irreversible and without a timely surgical intervention Grisha faces the risk of remaining disabled for the rest of his life.
SOURASKY MEDICAL CENTER in Israel is ready to help the boy. The amount required for surgery is $32 321.91
Nikita was born healthy and was developing normally, which was a joy for his parents. However, when he was 6 months old, he unexpectedly had his first seizure following a vaccination. The boy was continuously examined by different specialists, but the prescribed medication did not have any positive effect.
Provisional diagnosis of symptomatic focal epilepsy, impaired mental function, delay in motor development was made. Nikita was considerably lagging behind in development from his peers, he hardly spoke and has difficulties in understanding speech.
Nikita needed to undergo medical examination at Top Experts Center (Israel) to confirm the diagnosis and define the course of treatment. Thanks to your support we were able to raise the required sum 10.370 $.
Kolya is almost six. He’s gone through a lot for his age: he has been admitted to various hospitals and treated by top doctors, undergone numerous checkups without any evident results so far.
The name of the boy in this photo is Daniil. He had congenital lumbosacral myelocele. When he was an infant, he had his hernia sac removed, later he underwent numerous operations on his legs with plaster cast applied to them. He received several courses of rehabilitation.
Ten years later, following a regular MRI scan he was diagnosed with tethered spinal cord syndrome. Currently he can barely feel his legs. He is using a wheelchair to move around and crutches to walk at home. He is suffering from constant headaches, and a serious pelvic deformity has been noted. The Israeli Assuta Hospital, where a lot of our caretakers got treatment, confirmed the diagnosis and is ready to operate on the boy.
The hospital’s leading neurosurgeon believed that Daniil had a good chance of being able to walk without using a wheelchair or crutches. The aches and pains were disappear, and the progression of the pelvic deformity could be stopped. When the doctor was explaining this to Daniil’s mother, the boy burst into tears. He had been dreaming about a bicycle he would be able to ride by himself for a long time.
Through your kind donations we werer able to raise 53 915 euro for the operation.
More than twelve years ago, a little miracle happened – a girl Sonya Milovanova was born. She was born prematurely at 30 weeks gestational age and she was 40 cm long and weighed 1,6 kg. Sonya spent her first months in intensive care because she had respiration problems and was practically unable to see. First, she was diagnosed with organic brain disorder and later with cerebral palsy.
Sonya was currently attending a special school for children with disabilities. It prevented the girl from developing her abilities fully. Sonya’s parents had made up their minds to do everything possible to enable their daughter to live life to the full in spite of her health problems. Within the past 12 years Sonya had received treatment in numerous clinics and rehabilitation centres.
Six years ago, Sonya did a rehabilitation course at Professor Kozyavkin International Clinic of Medical Rehabilitation in Cyprus. It had a huge positive effect: contractions eased, there was improvement in her eyesight (she suffers from esotropia), Sonya was able to speak much better as well as coordinate her movements.
Cerebral palsy is a disease characterized by continuous regression. The patients require non-stop treatment to resist this tendency. Thanks to your support we were able to raise 3850 euro to pay for the treatment.
Sasha was born a healthy and energetic child. The parents loved their son dearly.
When he was 6 months old in the course of a scheduled checkup the neurologist was puzzled by a somewhat strange expression in the boy’s eyes and ordered an ultrasonic testing (UT) and a CT scan. The examinations results were shocking. The boy was diagnosed with cerebral atrophy and combined hydrocephalus.
So far it remained unclear what type of treatment Sasha requires. Specialists of the “Ichilov” Clinic, Israel were ready to conduct a complex examination to verify the existing diagnosis and decide on the treatment to be chosen.
Throught your kind donations we were able to raise 5610 dollars to pay for the medical examination.
Emil was born with a spinal cord defect. He was diagnosed with Spina Bifida at the Children’s Republican Clinical Hospital of the Republic of Tatarstan in Kazan. It’s a fault in the development of the neural tube and surrounding bones which leaves a split in the spine with a spinal cord cyst.
When the baby was 1.5 months old, he had an operation as a result of which part of the fat tissue was removed. The boy needed annual clinical MRI scan to be carried under sedation. Regular massage, therapeutic gymnastics and rehabilitation courses became an integral part of the boy’s lifestyle and put the whole family to the test.
In 2014 the boy was diagnosed with yet another problem – acute pyelonephritis, acute urinary retention. In spite of the regular rehabilitation procedures the boy has developed a club foot and started walking on tiptoes. His general condition was deteriorating and this year he was diagnosed with tethered spinal cord syndrome.
Although the current diagnosis was more than serious, Emil happened to be a cheerful boy. He could read, he liked listening to stories and he was planning to go to school next year. The boy as especially fond of constructing imaginary cities from Lego building sets. What’s more, Emil was keen on horses. He never forgot to bring them a treat when he was on a visit to an eco-farm. In a way, the “tethered spinal cord” diagnosis was similar to a time bomb.
As the boy was growing older, his health was deteriorating. He might finally find himself confined to a wheelchair. The Assuta Medical Center in Israel had offered to operate on Emil on 26 of March 2018.
Thanks to your support we were able to raise 51543 US dollars to pay for the operation.
Lena was born on 21 September, 2010. Her parents did not suspect that something was wrong with their child. However, a lump on the spine was spotted while the baby was still in the delivery room.
Later the diagnosis of spina bifida was confirmed in the hospital. At the age of 4 months she underwent surgery in Saint Petersburg which was followed by complications – meningitis and functional disorders of pelvic organs.
Nevertheless, the girl learnt to walk without any aids. When Lena was 2.5 she was diagnosed with tethered spinal cord syndrome. It means that as the child ages, the tension of the spinal cord increases, which may potentially result in inability to walk.
Lena went to school. She worked hard, liked to write and draw, won contests. But the girl got tired quickly when walking, complained of leg pains and was notably slouched, which were indications of changes for the worse in her condition.
Clinic Assuta in Israel was prepared to treat Lena giving her a chance of recovery.
Through your kind donations, we were able to raise 52 322,00$ to pay for Elena’s treatment.
Vera was born with no traces of life. Her heart was literally "started up", she was then connected to mechanical pulmonary ventilation and then brought to the crisis care department.
Now the girl is 6 years old. Behind her back she has years of intensive exercises both in Russia and abroad, as well as lots of tried and tested methods. Each therapy had a positive effect: Vera learned to crawl, sit, stand with support, take steps with babywalkers, and manipulate her hands. And Vera's family doesn't want to give up and stop at what has already been achieved, as they are confident this is not the limit of the girl's abilities.
Her family hope that the system of intensive neurophysiological rehabilitation based on Professor Kozyavkin's method will be able to help Vera! The rehabilitation course begins on June 8; 3,560 euros are needed in order to cover the costs.
Fedor is the third child in the family. The long-awaited son is ill: the developmental defect of the brain is lissencephaly + symptomatic epilepsy. Despite the diagnosis and contrary to all predictions, Fedya tries to sit, crawls, stands on legs, plays patty-cake, recognizes relatives, pronounces many letters and syllables.
For almost a year, doctors have been trying to find a drug that can ease epileptic seizures - but without success. Seizures do not go away, the brain cells die.
The Technon Medical Center in Barcelona is ready to help Fedya. We sincerely believe that the doctors of the center will be able to select the right drugs after careful examinations. The required amount for the examination and the appointment of treatment - 10 630 euros. Let's make a difference together!
Melanya Zlatina was born on October 19th 2016 in Eupatoria. On October 20th, when Melanya was 2 days old, she was diagnosed with Spina bifida and underwent surgery (hernia excision). Melanya’s parents saw their daughter on her sixth day and it brought tears to their eyes. She was lying practically motionless breathing with effort, which made her stomach rise. The sight of the baby was pleasing to the eye despite the numerous tubes, sensors, holders and bandages. Deep in the parents’ hearts there was a strong belief that everything was going to be all right.
The first stage of the therapy was over. Prof. Shimon Rohkind, the world- famous neurosurgeon, visited Krasnodar in spring 2017. He examined the girl and advised to carry out an operation to release the spinal cord in Assuta Medical Center, Israel. The procedure was performed in June 2017.
It was thanks to your donations that Melanya Zlatina was able to afford a rehabilitation therapy course in Adeli Medical Center in Slovakia. Specialists recommended another intensive therapy course in May 2018. What was most important, the girl had a good chance of learning to walk without support! Through your kind donations, we were able to raise the right amount of money to pay for Melania’s treatment.
Vanya was born on August 10, 2006 and he was a healthy baby. He was developing and growing like all children. In the age of 1 year and 6 months, Ivan went through a rotavirus infection with high fever, and after recovery about a week later he started to suffer from epileptic seizure. Parents immediately sought medical advice of neurologists.
Medications were prescribed, a long course of selection of drugs was conducted, but there was no improvement. Each time after the introduction of a new drug or increase in the dose, there was a short period of improvement, but after drug self-tapering action and drug habituation, seizures started again.
In February 2011, Ivan was given a status of a disabled child. Ivan got operated in 2012 and 2014 in the German clinic “Schön clinic”. There was an improvement in his health state and the boy could go to the first grade of the general education school. But in March 2017, there was a breakdown in his health.
Disease episodes began to reach up to 5 times a day. Ivan had managed to graduate from the third grade, but the severity of the disease maked his schooling almost impossible. Doctors presumed formation of a new focus in the inaccessible place of his brain.
The boy needed again to undergo diagnostic examinations in the “Schön clinic”, Germany to identify the causes of his health deterioration and choice of methods for further treatment. Through your kind donations, we were able to raise the required amount of money to pay for Ivan's examination.
Veronika was born prematurely at 34 weeks gestational age with emergency Caesarean section. The reason for the surgical procedure was the umbilical cord entanglement around the fetus and the risk of fetal hypoxia.
At the age of 8 months Veronika was diagnosed with spastic cerebral paralysis. Since then Veronika and her parents have been fighting for the child’s life against the severe disorder.
By the age of 5 Veronika had developed a complication – epilepsy. This condition makes it impossible to achieve a stable improvement in the patient’s state.
Veronika had a chance to get better if she undergoes diagnostic procedures at Assuta Medical Center, Israel. Thanks to your support we were able to raise 4020 euro to pay for the treatment.
The results were allow the doctors to decide upon the further plan of therapy and rehabilitation
Vika was only a girl, but she knew how to take care of close people: not only did she help her mother, but also took a mother’s role helping younger children and playing with them. She could both give support and calm them down. What Vika liked the most is to make puppet shows featuring various actors, from tiny animal figures to large cuddly toys. And the girl made a magic play out of every single performance – how incredibly interesting it is to watch it!
Unfortunately, it was very difficult for Vika to play more active games, like running, bicycling, or sliding down, because of her disease: when Vika was 2 year and 3 months-old, she was diagnosed with cerebral palsy. Despite a complex character of the disease, the girl’s condition could be improved if rehabilitation courses were picked up in a right way.
The girl had already completed several rehabilitation courses at Professor Vladimir Ilyich Kozyavkin clinic in Cyprus. Treatment was fruitful – the child can walk longer, she speaks much better, does physical exercises and would be so happy to make friends with other children, because now she can take part in their games. Through your kind donations, we were able to raise the right amount of money the to pay for the operation.
Olya and Sonya were born three months premature and spent the first 87 days of life in the intensive care unit. Despite grave condition and statistics, the girls survived thanks to the efforts of experienced doctors and due to timely brain surgeries.
After winning the battle for the lives of their children, the parents of Olya and Sonia were fighting for their health. Premature birth and hemorrhage entailed disturbance in brain function of both newborns. At the same time, according to experts, the girls had a great potential for recovery and development. Doctors agreed that a well-chosen treatment gives very good results even in such difficult cases – if it was timely and all available opportunities were used. In 2017 and 2018 the girls already received rehabilitation based on the method of Vladimir Ilyich Kozyavkin in International Clinic of Medical Rehabilitation, Cyprus.
The Kozyavkin Method was recognized as one of the most effective in rehabilitation of cerebral palsy. The course largely helped the girls and even «breathed new life» into their health and development. The girls made substantial progress: Sonya walked and had almost caught up with peers. Olya standed with support and got up herself with support.
It was important not to miss the moment, while positive changes were observed in the girls’ development. The sisters needed a new rehabilitation course in order to continue their not easy way to recovery. Through your kind donations, we were able to raise the right mount of money to pay for the treatment.
Maftuna found out about her illness by accident. She fell on the skating rink and was taken to hospital with cerebral concussion.
It was a minor injury, but the examination revealed a graver problem: the scan showed a tumor in the girl’s brain. Maftuna returned from Israel this September, where she underwent examination at the Sourasky Medical Center (Ichilov).
Doctors have diagnosed that her brain tumor is of benign nature. A new phase of diagnostics was waiting for a girl ahead. Thanks to your support we were able to raise the right amount of money to pay for the treatment.
Viktor is one of the six children in his family. He goes to school, helps his mother about the house and takes care of his younger sisters Angelina and Diana. Viktor is a good student and excels in everything he does, winning prizes at academic contests, freestyle wrestling tournaments and dancing competitions.
Nobody saw it coming when the boy went into a coma in 2015. It turned out that the coma was caused by a vessel rupture. Viktor was diagnosed with arteriovenous malformation, a congenital pathology that had not manifested itself before. The rehabilitation procedures following the urgent brain surgery resulted in a severe throat injury, which meant Viktor couldn’t breathe on his own afterwards.
Fortunately, the surgeons of Sourasky Medical Center (Ichilov) were able to bring back the boy’s ability to breathe and talk. The Israeli hospital later applied to our foundation for help to complete Viktor’s treatment. The surgeons in Tel Aviv Sourasky Medical Center (Ichilov), Israel performed a diagnostic catheterisation of Viktor’s cerebral vessels on June, 20. The procedure showed that the vessel malformation has closed and the boy won’t need any more brain surgeries. The boy left the hospital on June, 21. We thank everyone who helped to cover Viktor’s treatment!
Throughout her life, 8 year-old Alyona underwent 16 brain surgeries, while half of her life she spent in the department of neurosurgery. The girl’s life entirely depends on the special shunt - a system of tubes and a pump which allow removal of cerebrospinal fluid from the head. Alyona has suffered from shunt-dependent hydrocephalus and cerebral palsy since her childhood, which was a consequence of a severe birth injury.
Despite her health problems, the girl is good at reading and writing. She studies at a school for children with special needs. Thanks to your support, in June Alyona was diagnosed at the Israeli clinic Sourasky Medical Center (Ichilov). The shunt system was reprogrammed and now it functions well. Fortunately, there was no need to replace the shunt. The girl has already undergone several treatment courses which gave very good results thanks to the correction of injuries resulting from childbirth. However, given the complications of neurosurgical problems, Alyona needs constant neurorehabilitation.
The girl was able to complete such a course in Professor Kozyavkin’s clinic in Cyprus.
Thanks to your support we were able to raise 3672 euro for the treatment.
Makar sustained a severe brain injury in an accident at judo competitions in November 2015. The trauma only manifested itself a few days later when the boy suddenly felt sick and was taken to hospital with complaints of intense headache. The examination showed that the injury had caused a cerebral arterial aneurysm.
After the first surgery, with 5 microcoils installed in Makar’s artery, the boy’s life was still in danger as there was a high risk of aneurysm rupture. A second intervention was the only chance to stop further aneurysm growth and prevent a possible aneurysm rupture. The unique intervention took place on March, 6 in Tel Aviv.
The Israeli surgeons performed a complex stent implantation using innovative high-technology methods. The doctors reported a favourable outcome of the treatment. Makar left the hospital and remained under medical supervision in Tel Aviv.
Through your kind donations, we were able to raise the required amount of money to pay for Makar’s treatment in Israel. The surgery went well!
Maria is cheerful and smart, she loves dancing and swimming, attends pre-school education courses and is doing good at mathematics.
One could never tell she had any health problems, and yet the girl was born with a malformation of anterior palate. This disorder made it difficult for her to talk and eat: when swallowing, some of the food or water could enter the respiratory tract through the cleft of the palate, which imposed strict limitations upon the daily routine of the child.
Fortunately, the Israeli surgeons took on Maria’s case and managed to fix her problem. The complex intervention took place on February, 20 in Tel Aviv. It lasted for three hours and required the most careful attention of the surgeons.
Dr. David Leshem reported a favourable outcome of the treatment. He says there are no complications and the girl will not need any more interventions.
By February, 22, Maria already felt well enough to leave the hospital, and on March, 7 the girl and her Mom returned to Russia after a final consultation. Maria will now attend follow-up speech therapy sessions which will help restore her verbal function.
Ksenia had always been an active girl with vivid personality. She went to school, worked out and used to take long 20-km bike walks.
Her health began to fail in September 2016 when Ksenia started feeling an inexplicable weakness. With every passing day, it was getting worse. The girl developed severe anemia. In October Ksenia felt very sick and was taken to hospital. As it turned out, health deterioration was caused by duodenal cancer that Ksenia and her family had no knowledge of.
Unfortunately, the tumor had grown to the point of metastatic spreading. Multiple liver metastases, combined with the extremely rare nature of the illness, made it impossible for the Russian oncologists to help. Medical aid abroad was the only option.
Through the help of her family, friends and our donors, the girl has already undergone a surgery in a hospital in Mainz (Germany). The intervention went well. Ksenia came back home and is now receiving treatment at Dmitry Rogachev Centre for Pediatric Hematology and Oncology. Ksenia Travkina has been admitted to the Higher School of Economics (University). The studies began in September. Ksenia devoted all her energy to study and struggle against her disease.
However, in November 2017 medical examinations revealed that she had got multiple metastases in liver with inconclusive screening results and new additional minor hotbeds of disease. For this reason and in order to decide on treatment, doctors recommended a follow-up examination to be carried out in January 2018. Through your kind donations, we were able to raise the right amount of money to pay for Ksenia’s treatment.