The girl is still baby, she is under 1 years old. Ksenia was born with a rare genetic disorder - Apert syndrome. It is a premature closure of the bones of the skull which usually happens by 3 years old. This early fusion prevents the skull from growing normally, its volume becomes limited which affects the shape of the head and face. In addition, intracranial pressure rises which leads to deafness, blindness and disability.
The girl has already passed through a very difficult path. However, thanks to possibilities and achievements of modern medicine, it is possible to help Ksenia. Doctors may perform an operation which would correct the shape of the skull, while the child would be given a chance for a happy future. The treatment is scheduled for August 2020.